Debra is dedicated to finding a cure for EB, which affects 1 out of every 50,000 live births in the United States today. EB is a genetically based disease characterized by chronic, painful blistering. The skin and mucous membranes are so fragile that the slightest touch can cause severe blistering inside and outside the body.

Present at birth, EB affects men and women of all races and ethnic groups and sometimes, when there is no family history, it occurs as the result of a spontaneous genetic mutation. Today, there is no cure or treatment for EB, except daily wound care and bandaging. Genetic research is making progress towards treatments and a cure.

Donation Information

Donations to the Dystrophic Epidermolysis Bullosa Research Association (DebRA) can be made at any time and are always greatly appreciated by all of the EB Families out there. With help from supporters like you, Debra of America continues to support EB Research, and provide programs and services to people with Epidermolysis Bullosa and their families.

To make a contribution for the fight against EB, click here. Thank you for EBing part of the cure!